March 6, 2009

Mommy is flipping out...

Yesterday my mom and I took Regan for his annual X-rays to check his neck. This was the first time that he had ever had a procedure done where I couldn't be in the room.Remember, I'm pregnant!!! So my mom had to go into the room with him. When Regan realized that I wasn't in there he went running to the door screaming MEME!! I stood in the hall way and cried like a baby. I wanted so badly to be in there to help him but had to protect our little baby. It was horrible. When they finally opened the door he was still crying and I just held him and cried too. It was the toughest thing I've ever done to not be where he could make eye contact with me.

We go the call a few minutes ago that every parent dreads. The call that they found something and we need to see a surgeon. Regan has a fusion on C2-C3 and also has Atlantoaxial Instability. AAI occurs in appox 15% of children with Down Syndrome.

Here is some information about it from our favorite website


"AAI denotes increased mobility at the articulation of the first and second cervical vertebrae (atlantoaxial joint). The causes of AAI are not well understood but may include abnormalities of the ligaments that maintain the integrity of the articulation, bony abnormalities of the cervical vertebrae, or both.

In its mildest form, AAI is asymptomatic and is diagnosed using X-rays.....Symptomatic AAI results from subluxation (excessive slippage) that is severe enough to injure the spinal cord, or from dislocation at the atlantoaxial joint.

The neurologic manifestations of symptomatic AAI include easy fatiguability, difficulties in walking, abnormal gait, neck pain, limited neck mobility, torticollis (head tilt), uncoordination and clumsiness, sensory deficits, spasticity, hyperreflexia...and {other spinal cord} signs and symptoms. Such signs and symptoms often remain relatively stable for months or years; occasionally they progress, rarely even to paraplegia, hemiplegia, quadriplegia, or death. Trauma rarely causes the initial appearance or the progression of these symptoms. Nearly all of the individuals who have experienced catastrophic injury to the spinal cord had weeks to years of preceding, less severe neurologic abnormalities..



To say that I'm not flipping out is a lie. I'm worried sick. Not only could this limit Regan's acitivites as far as sports,jumping,and special olympics this could mean spinal cord injury for him. We go to the orthopedic surgeon at Childrens on the 18th. I'm ready to go now!! I need answers and so I'm off to look for information as to what we're facing.



March 4, 2009

Great topic for my 100th post!!

Okay so I don't have a giveaway of my own to tell you about. Truthfully, I've just been way to busy dealing with.............................................................pregnancy!!!! That's right I'm pregnant!! We were going to keep it a secret until after the first trimester was over but who am I kidding I'm too excited. Now I know that things could still go wrong, but I'm only thinking positive for the next 5 weeks. We got to see the baby on Monday. Right now it only looks like a little bean but we saw and heard a heart rate so that was great!! I am going to be going to the doctor every two weeks for a couple of months just to keep a close check. I would go every day if they would let me!!! I'm taking some progesterone to help thicken my uterine walls. It is an interesting medicine the side affects make me feel awkward but they are suppose to improve with time. I've know for three weeks today. It has been hard keeping our little secret but now it's out!

Even though I promised a giveaway and don't have one I do know someone who does!!!
Misadventures of a newlywed has a giveaway you should check out!


February 11, 2009

99 blogger post on the wall

take one down read it around..... 100 blogger post on the wall

oh, okay sorry for the song. This is in fact my 99Th post into blogger world. Can you believe that blogger hasn't kicked me off for my horrible grammar and spelling and lame content? Well, in honor of 100 coming up I'll be having a giveaway!!!

I have at least 10 readers a day according to my stat counter thingy! But only one of you :) leave comments regularly! Hopefully this giveway will make you come out of blog lurkerness..

Come back to see the 100Th post, it might be good!!




February 7, 2009

Hmmm

It's 12:06 on Saturday.
The kid has had a bath.
The dog has had a bath.
The dishes have had a bath.
The clothes have had a bath.
Who still hasn't had a bath??
That would be me, I feel yucky but, there is more cleaning to do. Oh, how I miss the days when a bath was a normal routine for me!!



*I'm looking for my cell phone and check card if anyone sees them!! Oh, my mind is gone

February 3, 2009

5 year trip

Our 5 year anniversary is in March. Ricky and I both want to go somewhere fun for it. We haven't traveled together much because we got pregnant two months after we got married. So,now that Regan is older and he would rather stay with anyone besides us..We want to go! Our problem is where do we want to go? A cruise? New York City? San Fransisco? Las Vegas? Florida Keys? Where should we go? I'm looking for suggestions. We have budget for two or three night with air and would rather not fly out of the country, Ricky doesn't have a passport. Help!!